財團法人器官捐贈移植登錄中心 Taiwan Organ Registry and Sharing Center

www.torsc.org.tw

	Center Introduction
	Origins
	From The Chairman
	From The Chief Executive Officer
	Organization Structure
	Board Members
	2nd Assembly of Consultant
	Founding Mission
	Future Development

Real-time statistics

Updated	Title	Number
2009.1.7	Waiting list candidates	5959
	Heart	94
	Lung	18
	Liver	609
	Kidney	4624
	Pancreas	49
	Cornea	593
2009.1.7	Deceased Donor	0
2009.1.7	Donors recovered	0
2009.1.7	Transplants performed	0

*	Waiting List Candidates reflects the current number of people on the waiting list for organ transplant.
*	The waiting list count is continuously updated throughout the day.
*	All candidates will be less than the sum due to candidates waiting for multiple organs.
*	Deceased Donor-related statistics based on TORSC data as of year 2009.
*	Due to transplants and donors recovered that are reported later than the actual occurrence, the totals shown may not be representative of final totals.

Origins

　　It has been over 15 years since the “Human Organ Transplantation Act” was signed into law in 1987. Through the efforts of the domestic medical community there have been advances made to the techniques of organ transplantation, resulting in safer operations and improved outcomes. The shortage of organ donors however means that for the over 7000 people each year awaiting an organ transplant, only 150 donors are found, or an organ donation of match rate of 0.00066%. This means that tragically many patients pass away due to organ failure before the needed organ becomes available. At the same time, there is no domestic registration and sharing system for patients awaiting organ donation. This means that there exists no cooperation between the donor and the

recipient, so precious donated organs are sometimes wasted. After referring to the Western nations' organ donation sharing operations, it was decided that the processes for organ procurement, organ donation, organ transplantation and organ matching should be standardized and computerized. The Executive Yuan Department of Health therefore contributed to the founding of the “Taiwan Organ Registry and Sharing Center ” to serve as a bridge between the donors, recipients, organ procurement hospitals and organ transplantation hospitals. In accordance with the amendment to Article 10, Paragraph 1, Subparagraph 2 of the “Human Organ Transplantation Act” published by the Executive Yuan Department of Health in January 2003, the Department of Health established in June 2002 the “Taiwan Organ Registry and Sharing Center ” to assist the government with registering organ donations and transplantations, building of database and related activities. The Center is also dedicated to improving the rates of organ donation and transplantation success in Taiwan, building a fair, open and transparent sharing system, and shortening the organ transplantation waiting times for patients in order to improve the effective usage of donated organs.

Chairman

	Shou-Hsia Cheng Chairman ,Taiwan Organ Registry and Sharing Center

From the Chairman

Our Registry Center is founded on the ideal of "Organ donations are a gift of life". We hope that the highest expression of love through selfless sacrifice can be used to help sustain human life. We also work to promote organ transplantation in partnership with the laws such as the "Human Organ Transplantation Act" intended to help those who are in need. To better promote human organ transplantation, restore the function of bodily organs and save lives, on June 19 1987 the "Human Organ Transplantation Act" was promulgated. After many discussions, amendments were announced in July 2002 that improved regulations governing human organ transplantation. These included allowing live liver transplants from blood relatives that expanded the options for legal organ transplants. This law together with medical science has now brought a ray of hope to many lives whose health is at risk. In the revised law, the act of organ donation must be without consideration, and to prevent traffic in organs, live organ donors may only donate to a designated relative; for relatives of a deceased organ donor, the Department of Health is also considering revisions such as funeral subsidies. These are all intended to reinforce the law's spirit of altruism, compassion, selflessness and sacrifice as well as to reduce conflicts of interest. Through these efforts, "Good Samaritan" gifts of life can be achieved using modern medical science.

Education：

‧Ph.D., Health Policy and Resource Management, School of Medicine, Yale University, US.
‧M.S., Institute of Public Health, College of Medicine, National Taiwan University, Taiwan
‧B.S., Department of Public Health, College of Medicine, National Taiwan University, Taiwan

Positions Held：

‧2008/5~ Deputy Minister, Department of Health, Executive Yuan.
‧2008/5~ Convener of National Health Insurance task force, Department of Health, Executive Yuan.
‧2008/5~ Convener of the Committee of Health Education Promotion, Department of Health, Executive Yuan.
‧2006-present Professor and Director, Institute of Health Policy and Management, College of Public Health, National Taiwan University, Taiwan.
‧2005-present Chairman, National Health Insurance Medical Expenditure NegotiationCommittee, Department of Health, Executive Yuan, Taiwan.
‧2004-2006 Professor, Institute of Health Policy and Management, College of Public Health, National Taiwan University, Taiwan.

The former Chairman

	Shih-Chung ,CHEN Chairman ,Taiwan Organ Registry and Sharing Center

Academic Background：

‧	D.D.S., Dept of Dentistry, Taipei Medical College

Administration Experience：

‧The Director-General, Taipei Dental Association
‧Member, NHI Supervisory Committee
‧Member, NHI Committee for the Arbitration of Medical Expenditures
‧Member, Dentistry Consulting Committee, Department of Health
‧Superintendent, Po-ling Dental Clinic

From the Chief Executive Officer

The Chief Executive Officer ：

Chief Executive Officer

With advances in medial sciences, Taiwan 's organ donation medical expertise has achieved significant successes. The most critical issue today however is still the shortage of organ donors. Compared to developed nations, Taiwan 's organ donation and procurement operations are still in its early beginnings. Further effort is required to catch up to the developed world. If organ procurement can be carried out fully, countless lives can be saved along with massive medical costs. Therefore apart from the partnership between law and medicine, our Center also works hard to promote organ donation. In the future we will put great emphasis on the training of procurement personnel, training of procurement teaching cadre and work with charitable organizations to popularize the ideals of organ donation. We hope that these will serve to light a beacon of selfless love for future progress in organ donations and transplantations. Our Center's future development will continue to rely on the experts in transplantation medicine, related laws, medical ethics, sociology, mental sciences, psychology as well as charitable organizations, corporations and the general public. Only with all of their support can this great endeavor succeed.

The Former Chief Executive Officer

Chief Executive Officer （ Jui-Yuan Hsueh ）

Education:

	MD, School of Medicine , Taipei Medical University ‧Bachelor of Law, School of Law , National Taiwan University ‧Master of Law, School of Law , National Taiwan University

Experience:

	Director-General, Bureau of Medical Affairs, Department of Health, Executive Yuan Deputy Director, Bureau of Medical Affairs, Department of Health, Executive Yuan Acting Secretary, Bureau of Medical Affairs, Department of Health, Executive Yuan Licensed Attorney Gynecology Specialist

Organization Structure

　　This Center is governed by a Board of Directors consisting of 15 Directors. One of the directors is the Chairman, who acts as the Center's representative.

　　 This Center also has a Chief Executive Officer and a Deputy Chief Executive Officer, with an Operations division and Administration division. The organization and staff will be expanded in the future to meet operational requirements.

Operations Division Responsibilities:

	Project Planning：

	Counseling for Procurement, Removal and Transplantation Hospitals . Establishment of an organ procurement network. Planning and implementation of organ matching operations. Promotion of organ procurement education. Education and training for related medical personnel.

	Organ Registry and Sharing：

	Planning and review of organ registry system's matching operations. Organ donation transplantation notification

	Publishing：

	Publishing of organ transplantation related publications. Production of related promotional materials.

	Evaluation and Consultation：

	Live liver donor evaluation. Assist with the processing, negotiation and progress tracking of cases under evaluation. Consultation on related issues.

	Collection and Organization of References and Information

	Cooperation with related local and overseas groups. International documentary references on organ transplantation.

	Other related items.

Administration Division Responsibilities:

	Financial management：

	Information management：

	‧Establishment, maintenance and management of organ registry and sharing system. ‧Liaising and management of registry and sharing operations. ‧Data entry and statistical analysis. ‧Webpage update, upgrade and maintenance.

	Human Resources Management

	Document Management：

Board Members

Name	Position and Organization	Specialty
Sheng-Mou Hou	Chairman, Minister of Department of Health	Health Administration
Jui-Yuan Hsueh	Director, Bureau of Medical Affairs, Department of Health	Health Administration
Fu-Yuan Huang	Deputy Hospital Director, Mackay Memorial Hospital	Health Administration
San-Kuei Huang	Vice-President, Bureau of National Health Insuranc	Health Administration
Jeng Wei	Director, Heart Medical Center , Cheng Hsin Hospital	Transplant Medicine Expert
Shu-Hsun Chu	Hospital Director, Far Eastern Memorial Hospital	Transplant Medicine Expert
Mei-Tu Yang	Head of Gastroenterology, China Medical University Hospital	Transplant Medicine Expert
Chao-Lung Chen	Director, Chang Gung Memorial Hospital Kaohsiung	Transplant Medicine Expert
Yao-Jen Chang	Deputy Hospital Director, Buddhist Tzu Chi Hospital Taipei	Transplant Donation Expert
Lung-Pin Chen	Deputy Hospital Director, China Medical University Hospital	Transplant Donation Expert
Po-Chang Li	Chief Surgeon, National Cheng Kung University Hospital	Transplant Donation Expert
Po-Huang Li	Chief Surgeon, National Taiwan University Hospital	Transplant Donation Expert
San-Jung Huang	Attorney , Formosa Transnational Attorneys at Law	Legal Expert
Li-Li Tsai	Manager, Department of Social Services, Mackay Memorial Hospital	Social Services
Chi-Hsiang Chang	Chairman, Organ Donation Association of R.O.C.	Organ Donation Volunteer

2 nd Assembly of Consultants

Name	Position and Organization	Specialty
Ming-Kuen Lai	Chief of Cancer Department, National Taiwan University Hospital	Transplant Medicine Expert
Yung-Yao Lei	Vice Superintendent, Taipei Veterans General Hospital	Transplant Medicine Expert
Jui-Heng Hu	Secretary General, Transplantation Society of Taiwan	Transplant Medicine Expert
Ching-Feng Lin	Acting Secretary, Office of the Minister, Department of Health	Health Administration

Founding Mission

To promote organ transplantation, establish organ transplantation data, encourage the effective utilization of donated organs and improve the health of citizens.

Operations

(1)At the behest of the central supervisory health agency handle organ donation, transplantation and registration operations.
(2)Set up organ donation and transplantation database.
(3)Establish organ donation, transplantation and matching processes.
(4)Provide counseling to organ transplantation hospitals, organ removal hospitals and organ procurement hospitals.
(5)Organize education and training activities to assist in the development of professional expertise.
(6)Produce and publish books or publications related to organ donation and transplantation.
(7)Promote organ donations.
(8)Other affairs related to the encouragement of organ donation and transplantation operations.

Future Development

Goals：

(1)Improve organ donation rate
(2)Improve organ donation card signature rate
(3)Improve rate of successful matches
(4)Improve rate of transplantation operation success
(5)Reduce cases of organ disposal.
(6)Shorten the organ transplant wait time.
(7)Improve satisfaction of donor relatives.
(8)Improve satisfaction of recipient and relatives.

In the future, the work of conducting organ donations and transplantations will rely on the involved parties such as the transplant surgeon, recipient, donor and their family, organ procurement hospital, organ removal hospital, organ transplantation hospital and the registry and sharing center all working together. The ultimate goal is to use a transparent and scientific network-based registry and sharing system to conduct immediate transplant condition matching. This will enable every patient awaiting an organ transplant to have a fair opportunity at receiving transplantation surgery, thus improving the effectiveness of organ donations and transplantations.

Visitors：121245

Update： 2008-03-13

Address：11F., No.17, Jinhua St., Zhongzheng District, Taipei City 10092, Taiwan (R.O.C.) （